I am one of the few lucky ones who had the aneurysms repaired with no major bleeding. Two stents, located in the circle of wills. I also was diagnosed with a Chiari Malformation (brain herniation) Have you done any studies with survivors who were actively searching medical diagnosis when MRI was finally ordered? thanks for the foundation, great information!!
I lost my husband and father of my children, Dwight, four years ago to a brain aneurysm. He was 63. My husband was very disciplined in exercising, a life long martial artist, and ate extremely healthy. His family had a history of hemorrhagic strokes. His older sister had gone to see her doctor 2 years prior for ringing of the ears. The doctor, finding nothing, decided to do an MRI, where he discovered she had 2 aneurysms. They were able to operate and she continues in good health today. Knowing his family history, I had convinced him to see a neurologist. Unfortunately he never made it. He passed away days from his appointment. We had just entertained some friends, and while I finished cleaning up, he went up to bed. 15 minutes later, our kids and I found him unresponsive. If he had any of the symptoms described, we'll never know. What I do know is... I felt something was off in the weeks/days leading up to his death. Nothing clearly definitive.. slight, unusual forgetfulness, when we went for a walk, his gait was a bit off.. I made him go to his regular doctor, who did an EKG and found his heart healthy. We then made an appointment for the neurologist a couple weeks later, which he didn't make. So my advise is if you suspect anything, or feel something is not right, GO WITH YOUR GUT! If I had insisted he get an immediate appointment with the neurologist, he maybe would still be here.
The morning of October 22nd, 2016, my sister and I found that my Father, in The bathtub after suffering a severe brain anurism. He was still alive, but was stuck paralyzed for over 45 minutes. We tried to save him was a MISTYIII trial, surgical procedure, that was headed up by John's Hopkins. It seeks to drain the clot that causes the brain damage. Needless to say, he died from complications on Nov. 7th, 2016. We were hopeful, but I still believe that it is shoes great advances for faster recovery. I'm saddened, and heartbroken, and want to help advocate for your foundation. Please contact me if you need volunteers for your cause. Thank you
Several years ago, my mother had an aneurysm that ruptured. She went from having an extremely high IQ to having to learn to walk and talk again. She has had a long battle just to get back to being able to function. I have always suffered from migraines. It finally got to the point of not getting any relief. I had an MRI which showed that I had an aneurysm. Jan 3, 2015, I had mine coiled. I've done reasonably well but the headaches have never stopped.
On Oct 14, 2016 I was working out in the local YMCA. I was taking a class that I had taken for 3 years. In the middle of a set of inclined chest pressed my THUNDERCLAP headache occurred. I did not know what was actually wrong but I took myself to member services to seek medical attention. By the time EMS arrived my finger were numb and not working, I was throwing up and my head was killing me. I was able to get to Williamson Medical where my Sports Med Dr - Dr. James Lohse met me. He met with the ER Dr on call and they decided to run a CT Scan. With the results of the Scan Dr. Lohse had me transported to St. Thomas West Medical Center and Dr. Spooner started my angio. By the time the angio was over it was determined that my subarachnoid hemorrhage had self healed and closed off. I did stay in ICU for 7 days while they monitored me. I have no negative effects from the bleed. I was sore and tight and thru PT I have been able to finally release all pain in my lower back and legs. I know that I was very lucky to self heal and that I have no lingering effects.
They said I was supposed to die. On 10/31/2016 I suffered a sub arachnoid hemorrhage right behind my eyes. On top of that, I apparently had a grand mal seizure as well. I don't remember much though I do remember having the worst headaches I had ever experienced for three or four days before it happened. I went down in the shower that morning and my wife (Sarah) found me with the curtain hanging over me. Thank God she heard me. She called the first responder in our little town and he raced to get the truck. He put me on oxygen and called the ambulance. I ended up being life flighted to a hospital in Tulsa and they did coil surgery. I was there 14 days as they did trans-cranial dopplers and CT scans to check for vaso-spasm. Apparently, I am lucky. Though I don't believe that. God saved me. I have been told that 50 percent of all aneurysm cases don't make it. Both neurologists that saw me said that with the seizure added on I shouldn't have made it. But, here I am 74 days later writing this letter. I told you God saved me...for a reason. Of course, a lot of things had to happen at just the right time and directed by just the right people. I am so thankful for all the people that cared for me, prayed for me, and went above and beyond. So here I am, a miracle in the making. I am so sorry for all those whose story did not turn out like mine and they lost someone because of an aneurysm. I am so thankful that God gave me a second chance. I plan to use it to bring awareness to people about the signs and symptoms of a possible aneurysm as well as spread the good word that with God in our life, miracles do happen. I'm living proof.
I lost my beautiful sister, Belinda in 1977 at the age of 14, from a congenital brain aneurysm. Two weeks prior to the rupture, her pediatrician diagnosed Belinda with the flu. Her symptoms were headaches, throwing up and not feeling well. I was 19 at the time and remember this like yesterday. Belinda was in the 8th grade when her aneurysm ruptured at school during her lunch break. Dr. Cheek, head of neurosurgery at Texas Children's Hospital in Houston tried to save her life and could not. I remember him saying to us that he has a daughter the same age. Belinda's legacy lives on with two beautiful songs that have been produced by two very dear friends of mine. One is called, "Billy Goat" and the other "Everywhere". I am happy to share them with your foundation. Thank you for helping others recognize the importance of early detection of potentially fatal aneurysms. This is the link to the song, Everywhere in memory of Belinda, written and performed by Sonya Shell. https://soundcloud.com/sonyashell/everywhere-2016-written-by-sonya-shell?utm_source=soundcloud&utm_campaign=share&utm_medium=facebook
Just watched the OZ show and it was very helpful..my story as an ER nurse began with a very dizzy morning of nausea and localized "ponytail pain" behind my left ear. I was convinced like so many just something I ate and slept the weekend away(well only 1 day of total exhaustion)...but 4 days later I took my b/p and it was high 150/90 and I self drove myself to the ER for further evaluation...CTscan clear...spinal tap clear...but the mri revealed an incendental small 2mm rt. opthalmic carotid anuersym unruptured. transfered to Providence hospital I saw the chief neurosurgeon who will follow yearly the aneursym with MRI with Dye to see if it progresses.Being a mother of 4 I feel like many who can just push thru feeling crappy...alot of us do. However so glad to see more information out there to help us understand this serious condition. I have no restrictions as of yet but the warning signs i will never wait again. I was told for the pain(unrelated to the unruptured aneursym was tylenol.But if the sudden waves of seasick nausea present themselves with blurred vision i will not ignore them,....I just hit 50 and pray medical progress will continue to advance to help those out there. god bless and thankyou for your foundation of awareness,,,,lilly
Hello, my name is Leslie as you know. I found out this year in March that I have 4 Brain Aneurysms. One of them was measured @ 10 cm and the other 3 are smaller. I went to a surgeon @ a local hospital in my city. He did test that he needed to do. He told me where the Aneurysms were located as well as the surgery I well have. I was scared and devastated but, he assured me I was in good hands. The 10 cm Aneurysm procedure was done with a Pipeline Stint and Coil. I'm do for another surgery in January to remove the other 3. I thank God for my PCP who went further into getting me the test that I needed to find out what was wrong with me and Thank God that the Medical field has stepped up so much.
My cousin, Megan Phillips Aesch suffered a hemorrhagic stroke several years ago. Meg with the support of her husband and family as well as many friends, has never given up trying to regain parts of her pre stroke life. Meg's story has just been published - "I Tied My Shoes Today - Recovering from a hemorrhagic stroke" and is available on Amazon. An amazing story of courage, love and determination.
I was released from the hospital today after coiling surgery for a brain aneurysm.i had no idea I had this..I actually went to a ear doctor for clogged ears..my ears were clear and he decided to do a MRI to make sure inside my ear was ok. Well to everyone's surprise the MRI showed the aneurysm. From there my primary Doctor sent me to do a MRA to be positive.From there I went to the neurologist who scheduled my surgery.i had the coiling done on Tuesday..Surgery went fine. Had to stay a few extra days but got home today feeling so grateful.The doctor does not know how long it was there. I had no symptoms at all.It is truly a silent killer. As I reflect on this week I am very emotional to know how lucky I was..To think I just went to check my ears. This is my second chance at life. I am going to spread the word about aneurysms..With you in mind Lisa I will try and enlighten everyone about it and let them know if you feel something different see your dr. Right away..R.I.P Lisa
I am a survivor! My brain aneurysm ruptured on May 12, 1015. Being a migraine sufferer, I knew the horrible headache I was having was not a migraine. I had gone home from work for lunch, and as I was ready to sit down, It felt like someone hit me in the head with a ball bat. On a scale of 1-10, I told the doctors it was a 20+. I was unable to lay down or sit. My husband came home and took me to ER where they found the brain bleed on a CT scan. My doctor told me a helicopter was waiting to take me to the University of Iowa Hospital. I was taken to surgery where they went through the groin to the brain and put the coil/clip. I was hospitalized 10 days. After home, I continued to have headaches for 1 month until the blood from the bleed was absorbed into my body. I had 6 weeks of occupational and physical therapy and was off work for 13 weeks. I am one of the lucky ones. I have minimal side effects and tell myself I shouldn't be here. Prayer worked wonders. My roommate came in with the same thing but passed away not long after I was admitted. I have a better outlook on life than before. My angiogram at the 6 month mark showed the coil was not leaking and was in place. I was given a second chance at life. Thank you God.
A good friend of mine lost his wife to a Brain Aneurysm August 10th. She collasped while she was at Crossfit on August 4th and was rushed to the hospital. That following day, she was sent to surgery to repair the aneurysm and it was a success but this event had caused an enormous toll on her brain. Many sections of her brain were essentially "dead" and in the event of her waking up, she would have most likely been a "vegetable" the remainder of her life. So, with careful consideration and her wants, her husband took her off life support. This has hit home with me because it IS true when they say life is too short. Raising awareness is quite possibly the best solution. In some cases, lives have been saved because of pre-diagnosis. This is wonderful! If we can use the tragic events in "our" lives to help others and possibly prevent tragedy, then it's a "win win" for all of us. He's doing as well as he can. He was married for 15 years and they have a three year old daughter. He's an inspiration to everyone around him and her legacy will live on through him and their daughter. I hope by sharing this post helps others cope with whatever situation they may be in.
I suffered a brain aneurysm in 1995, just one week after delivering my only child. It was due to an epidural needle that actually taped my spine, set up a clot, then raced to my brain and ruptured. It reminded me of an atomic bomb going off in my head. Sixteen hours had passed, along with complete loss of vision before I finally had my husband race through emergency. That was on a Tuesday. The hospital took every test imaginable on my brain, finding yet another aneurysm sitting in the center of my brain stem. By that Thursday, my doctor informed me of what happened and that he, along with the several other doctors involved, didn't understand why I was still able to talk and communicate. My brain actually swelled. My doctor did however inform me that I wouldn't survive a surgery, and by all indications, I would be dead by the weekend. Being told that there is absolutely nothing that can be done from a doctor is a lonely, lonely place. However, what precluded me from be helpless was the power of prayer. Twenty-one years later, I'm still here, no surgery of any kind, and the second aneurysm just went away. Dr. Duke Sampson was the last doctor to see me, two months after the rupture of the first aneurysm. Dr. Sampson stated that the second aneurysm had to be removed or if I so much as bump a wall, it could rupture. So on the date of the scheduled surgery, one last angiogram was conducted, however, there was nothing there. I was then released from the hospital and sent home to gain a new life. I'm currently writing a book about my journey as I've not found anyone to date that has experienced the same trauma to the brain as I, and recovered on their own. I totally depended on God everyday and still do. I knew that if woke up every morning and could just breathe, I knew somehow, God was working it all out for me. My daughter is now 21 years of age. I'm a business owner, I'm productive and profitable. I know that my journey is not yet over, so I just keep breathing.
In 2007 I fell flat on my face, could not move, when I could, I went to bed for 3 days with a headache. I finally went to the ER and found out I had a ruptured brain aneurysm. I flew to the Mayo clinic and they found 2*more. One at the base of my brain and spinal chord connection. I am a survivor with minimal effects. I own my own business and am doing well. My mother died of 5 brain aneurysms
My son passed away on August 14, 2016 we were watching TV and he just fell over I thought that he had choked on some food but it was a brain aneurysm he had no symptoms nothing appeared to be wrong we were having a good day and everything was great now I'm without my wonderful 18-year-old son life will never be the same
I am a brain aneurysm survivor since 2007.
After 15 years He is still alive. My dad had 2 brain ane
My story is a perfect example of what not to do. I hope people learn from my story. On May 3, 2016 I was at work and experienced what I could best explain as a sudden intense hot flash feeling with intense sweating followed by the worst headache I have ever had. I told my coworker I was not feeling well and drove home. I told my wife I thought I was sick and felt nauseous. I took a shower and went to sleep. I woke up 6 hours later took some Advil and a shower and drove to work. I lasted about 4 hours at work and couldn't stand the headache any more. I went home and went to bed. I called in sick on my Friday and had Saturday, Sunday, and Monday off. I spent those days at home taking Advil and a hot shower every 4 hours to ease the horrible pain from my headache. I was also throwing up. Tuesday I called in sick and told my wife to call an ambulance. I went to the emergency room and the Doctor ordered an MRI. The results were inconclusive. The ER Doctor consulted a Neurologist at another hospital. They gave me a spinal tap and found blood in my spinal fluid. They shipped me to another hospital where the Neurologist was. Upon arrival the Doctor met me and told me he was 99.9% sure he saw an aneurysm on the MRI. The Doctor attempted to coil the aneurysm but was unable to complete it successfully due to a blister on it. I had waited so long to go to the hospital that it blistered. Plan b was to perform the craniotomy surgery. The next day after 7 hours of surgery the Doctor was able to place the clamp on it successfully. I am doing well with no problems or side effects today. I am on no medication. I am very lucky. The moral of my story is never ignore a headache, especially the worst one you have ever had in your lifetime. Six days is too long to suffer from a headache. Spread the word. I am so sorry for the loss of your wife.
In 2014 my mother was 50 yrs old.She had high blood pressure but never went to see a dr. She drank soda and coffe to cure her headaches.she had stress of working 7-3pm caring for my ill grandfather.she suffered from alot of headaches blurry vision slurred speech she didnt know the risk of all those signals. She suffered a brain anuresym stroke ,coma for 4 months and alot of seizures. Dr diagnosis was vegetable state. My mother now at 52 yrs. She just had her crainotomy flap back replaced in her head 2 months ago. She has no feeling in left side of body. She can speak a little .But lost most memory of who family and things are.