Guestbook

Write a new entry for the Guestbook

 
 
 
 
 
 
 

Fields marked with * are required.
Your E-mail address won't be published.
For security reasons we save the IP address 23.20.64.96.
It's possible that your entry will only be visible in the guestbook after we reviewed it.
We reserve the right to edit, delete, or not publish entries.
Amy Murphy from New Haven wrote on October 5, 2016 at 11:27 am:
I read many of the other entries in the guest book. Unfortunately, my story is not one of survival. 9 years ago, my 40 year old husband died suddenly of a ruptured brain aneurysm while I was pregnant with our second daughter, and our older daughter was 10 months old. He had been having headaches for about a month or two prior to his death. At the time, we thought it was due to a change in his work schedule, and the hectic life of having a baby and one on the way. He had made an appointment with a neurologist, but it was scheduled for a week after he died. He had a history of slight high blood pressure, but the doctor didn't think it was bad enough for medication. In retrospect, many of the signs were clear, but at the time it didn't occur to me that anything could be seriously wrong. After he died, I found out that my husband's grandfather and uncle had died of the same thing, though at an older age. Although our girls and I are doing well now, and I have since remarried, I wish we had known more about it at the time and perhaps life would have turned out differently. I applaud this foundation and it is my hope and wish that many more people can be spared with more education and awareness. RIP David, we love you!
Misti from Ennis wrote on October 5, 2016 at 10:08 am:
Hello survivors of these crazy aneurysms! I am 35 years old. I was 28 when I had my aneurysm (s). It actually happened on New Years Eve. Me and my at the time boyfriend were getting ready to go out on the town. I complained that I had a horrible headache to his mom. She gave me some Tylenol and we left! I'm driving and before I knew it I passed out behind the wheel. My boyfriend got us pulled over and called 911. The ambulance came and picked me up and took me to the nearest hospital. From there I got care-flown up the Zale Lipshy where Dr. Welch aka the best NeuroSurgeon took care of me! I am a little biased but in all reality he is my guardian angel! I was in the hospital for 14 days and got released. I went back to see Dr. Welch for a checkup to which he told me I had another aneurysm and wanted to know when I would like to come in for ANOTHER surgery. Well of course immediately! I didn't want what happened to me the 1st time happen again! So I went in for that surgery. That surgery, unfortunately, was unsuccessful due to the location of the aneurysm. It was located where a few other blood vessels met up. Soooo, I had another surgery. This surgery lasted up to 11 hours and was by far the scariest one. Dr. Welch took an artery out of my arm and totally rerouted my "the wires in my brain". After 11 hours under the knife, the surgery was successful! Shortly after I got release I could go back to work but I also had to go to therapy. I would go to work in the morning and then would leave to attend therapy in the afternoons. I did this for about 6 loooong weeks but at the end of it all I was very thankful. I ended up having short term memory loss but thankfully that was all that I had. I still have "short term memory loss" but nothing Iike it was back then. My work has been wonderful working with me since all of this happened and by the grace of God I work in a hospital!
Gail Jacobs from Huntington Station wrote on September 30, 2016 at 9:08 am:
I had three aneurysms. Two of them the doctors fixed. The third one they are still watching. Lisa's foundation asked that if you had aneurysms, you write about it. Well, here I am. I was at work when it happened. I just grabbed my head. The pain was unbearable. This is where the long haul begins. It was Dr. Jonathan Brisman who did the surgery. It took 6 weeks in the hospital and another week in rehab before I came home. My right side was completely numb from my head to my toes. I couldn't write. The doctors who have helped me through the years are Dr. Wirkowsky and Dr. Friedman. They are neurologists. I couldn't talk at all. I have seizures each month, but they are watching them. It took a long time, but I'm in better condition than I was seven years ago. The date it happened was May 23, 2009. I think Lisa was a remarkable person, and I couldn't believe she died from the same thing I had. I look back now and think maybe she was looking down on me. My husband is helping me write this.
Heather Williams PRSS from New Orleans wrote on September 24, 2016 at 2:28 am:
I am Heather: An impossible situation becoming a possible miracle My name is Heather, and at the age of 33 on February 5, 2009, while taking a bath I felt a striking pain at the base of my neck on the right side that rang like sirens in my ears. I did not know what was happening to me. I continued to bathe and 30 seconds later I was struck on the left side like lighting. I got dizzy, and I was scared. I screamed for my 13-year-old daughter Kaysha to call my mom as I attempted to put my clothes on. I made it to my bedroom where my daughter was on the phone with my mom. As I laid on the bed quietly, suddenly I had an urge to use the bathroom and knew I could not make it to the bathroom alone. I attempted to go by myself, but I collapsed to the floor. I could faintly hear my daughter telling 911 my momma is on the floor. Anything remembered by me after this point are just snapshots and was told to me by my family. EMS arrived and transported me to Tulane Medical Center emergency room where several tests were done which confirmed I suffered two ruptured aneurysms. The doctors inform my family I suffered two ruptured aneurysms and they needed to perform immediate surgery to implant a drain in my skull on the right side front to remove the fluids and blood that flooded my cranium during the rupture to stop damage My family agreed to this surgery, and it lasted for two hours. Shortly after this surgery the doctors informed my mom ruptures caused severe damage to my brain and they needed to coil my aneurysms through another medical procedure. The doctors predicted I had a 10% chance of survival. My family agreed to the proposed surgery in hopes that it would save my life. I was prepped and taken to surgery once again for almost four hours. The news of my successful surgery spread throughout the hospital; I was referred to as the “miracle girl.” I received so many visits from doctors, nurses etc. who thought it was totally remarkable that I lived since I was predicted to have only a 10% chance of survival My mom wanted me to know just how special this situation was so when we arrived home this is what she said to me. “Heather, you are a miracle because God chose you to survive something that most people do not. You survived a situation that you were given 10% a chance to live. The night you were transported to Tulane Medical Center you were one of three women admitted into the Emergency Room that night with brain aneurysms. Heather, you were the only one who lived to tell the story, you are a MIRACLE!” I am truly grateful to be alive! Within a month I was rid of the walker, wheelchair, and potty. I suffered from a deep depression as a result of my situation. More than anything, I was ready to get back to my norm. So I worked hard and diligently so that I can once again do the things I enjoyed doing. It was one hurdle after another to jump, but I continue to work on becoming healthy. Today, I am proud to work in Mental Health as a Peer Recovery Support Specialist advocating for my clients and in college majoring in psychology.
Lisa Gallant from Newmarket NH wrote on September 12, 2016 at 11:15 am:
In 2006 I received a call at work from my pcp informing me the scan I had done due to the change in headaches showed a brain aneurysm. Off to see neurosurgeon #1 in Portsmouth. He said he could do it but since it's in the center of my brain once my brain is exposed it would be hard to find. Rather than play search and destroy in my brain we thought it best to see another surgeon so off to Mass General in Boston we went. I had my first craniotomy shortly after. After about a year it was life as I had known it pre-aneurysm. In April 2009 I was diagnosed with 2more aneurysms, one on each side of my brain. Between may and end of June 2 more aneurysms grew. I had them all clipped in multiple craniotomies by July 4th weekend. One craniotomy was a receipt because 29 days after an aneurysm was clipped it hemorrhaged. I learned then clips were not 100% protection as I thought. In 2011 it was time for a scan to make sure all my aneurysms were behaving. Unfortunately it showed that one of the clipped aneurysms had grown it's twin out from the end of the clip that had flipped behind the original aneurysm. Thankfully I had it done on a 3-D scan or it wouldn't of been seen because it was hiding. Along with that one I was diagnosed with 2 new aneurysms in my carotid artery behind my left eye. The 6 aneurysms in my brain are clipped and the 2 behind my eye haven't been treated yet.
Susan radosta from Williamsburg, va wrote on September 11, 2016 at 7:04 pm:
On Easter 2014 I was not feeling well. Went through all the motions of a family Easter Sunday. Monday morning I went to work. I don't remember anything about the day but my husband tells me he found me late at night very sick. He went to take me to the er and I passed out. Once at the er I started having seizures that's when they found the 1 ruptured and 2 nonruptured anuerisms at that point I was airlifted to a hospital in Richmond to undergo emergency surgery during the next 23 days I remained in icu and had another stroke and another surgery. I have 3 anuerisms all three are coiled and 1 has a stent. I have 3 children. My youngest is now 12 and autistic. This has been very hard on my children as most of you know thank you for reading my story
Cat L from Quincy wrote on September 11, 2016 at 3:09 pm:
My story started when I was about 25 (1988) with symptoms that were stroke-like and head pain. I was in the hospital for a week getting all sorts of tests done and they determined I had a migraine... This happened a few more times in my life and those were also determined to be migraine. It was frustrating as well as scary to have strange symptoms and not know why... and then be told that I am making a big deal out of nothing. In 2010, I had the same type of symptoms again and headed to the ER. The doc only did a CT and sent me home saying it was a migraine. The next day, I begged my GP to order an MRI because of the family history of aneurysm and my ever increasing migraines (in frequency and intensity over the prior year). He is a compassionate man and he listened. The MRI came back clear but about 1.5 weeks later, my GP called me and said that they looked at the images again and saw a shadow. Turns out I DO have an internal carotid aneurysm (as I suspected) and it was 1.5cm (giant) in my cavernous sinus area between the brain and the meninges sheath by the Circle of Willis. Between that time and my first surgery in August of that year, it had grown to 2.5cm. I had 4 stents and 2 coils done by a phenomenal neurovascular surgeon (Dr. Demetrius Lopes in Chicago). Then in Oct 2010, I needed 2 more surgeries to add 3 more coils then 11 more coils to the same aneurysm. I seemed to be improving then in April 2012, I began having constant pain again and changes to my vision. In March 2013, I had a fourth surgery to add a Pipeline inside of the existing 4 stents. Total: 5 stents/16 coils I have quite a few neurological, visual, brain issues as a result but I thank God every day that I am still here. I believe that there are gifted surgeons who do remarkable things to save people with aneurysms but the after-care kind of gets lost in the shuffle. Thank you, Todd, for starting this foundation in honor of your beautiful wife. You will be helping to bring awareness to untold amounts of people about aneurysms! Thanks for letting me share my story!
Tammy Curmano from Denver, CO wrote on September 11, 2016 at 2:44 pm:
At the age of 39, I had an aneurysm rupture. I had multiple surgeries and now have a clip and a shunt for life. After 7 weeks in Neuro ICU and 6 weeks of rehab, I started getting my life back. It's a long journey, but worth the fight. I hope others stay strong and believe.
Sharon Adams from HOLLY SPRINGS wrote on September 11, 2016 at 12:35 pm:
Here is my story. Since this aired in September 2015 I have had an additional coiling. Adding 7 coils and 2 stents to my existing Brain Aneurysm (7/25/16). Total of 17 coils now and 2 stents. http://wric.com/2015/09/29/chesterfield-woman-shares-story-for-brain-aneurysm-awareness-month/
Patti Jo Swisher from South Wilmington wrote on September 11, 2016 at 11:06 am:
In 2004, I survived a rupture. In 2006 I had another aneurysm clipped. I'm also a nurse. In the years that have followed that circumstance I found there to be so many people who really do not understand the unusual symptoms and confusion upon coming home. The doctors treat for migraines without scanning to see if there is a reason for those migraines. Insurance companies want to argue paying the cost for the MRI/MRA because "just a headache" isn't enough of a reason. There are still many to teach. There are still survivors going home with no support. I do believe that this foundation....will change that.